Thursday, 22 August 2013

Great Tips for Fundraising

If you're thinking of doing fund raising for us (or indeed anyone) then these tips will be really handy. Rylan Clark (yes, him off the telly - X Factor and Big Brother) has been doing just that this year on Celebrity Family Fortunes and Tipping Point. 

While your fundraising activities might not include a stint on ITV (although if it does - kudos!!), the same principles apply:

Gift Aid - Increase the value of donations (including sponsorship) by 25Gift aid logop in every £1. Find out how by clicking here.
Matched giving – Some employers will match the money you raise. Others may donate or support you in other ways especially if you can thank them publicly - a room for your event, catering supplies, printing, stationery, or raffle prizes such as a day off, a late start or an early finish. Some employers are connected to grant-making trusts or foundations.
Donations of money, services or gifts in kind – Could friends, family, local shops and businesses donate prizes or supplies, or sponsor aspects of your event? We can provide an endorsement letter to show your fundraising is genuine and also information for potential donors. Some businesses may buy advertising space in your programme.
Local sources of funds – Many areas have grant-making trusts and foundations, and some county councillors have locality budgets for charitable donations. Stress the difference your event will make - increased confidence for your volunteer helpers, for instance.
Online fundraising and social media – Reach more donors, keep them interested and make life easier by:

  • Creating an online donations page. As donors pay at the time of sponsorship, there’s no need to chase them afterwards (phew!). We can still provide a paper sponsor form for those who do not like to give online. You can set up an online donations page at www.justgiving.com.
  • Using email to send a link to your online donations page to people all over the world.
  • Using our downloadable information on the difference the money you raise will make.
  • Keeping things interesting by updating your supporters on how things are going through email or a blog.
  • Using social media to spread news and updates. Connect to our fundraising facebook page and twitter feed.
Fundraise with us on Facebook - click here
Fundraise with us on Twitter - click here

Get your fundraising noticed – you can order posters by clicking here and read our publicity tips and sample press release by clicking here. Publicity raises much-needed awareness as well as funds.
Show your supporters what a great cause you are fundraising for. Click here to download information you can use as a poster or email attachment.
Guess to Give - keep things lively with a sweepstake. How quickly will you run the marathon? How many stitches will you knit? Supporters pay £3. to enter with 50p from each guess going into a prize fund for the winner and £2.00-£2.50 coming to charity. Visit www.guess2give.com.
Side events - you may be fundraising for a special event but perhaps you could reach your target more easily by holding a side event - cake sale, raffle, quiz, sale of DVDs...
Ask people for help – could they help with your event or hold an event of their own to boost your fundraising?
Interested in organising a fundraising event? Read our information by clicking here.

Keeping it legal and keeping it safe – Read our tips by clicking here.


Wednesday, 21 August 2013

Guess Who Popped Into the Office??

Premiership footballer and Scotland international player Russell Martin took us all by surprise recently and popped into the Crohn’s and Colitis UK office.


Russell became a Crohn's and Colitis UK Champion in 2012 for our IBD: Sport and Fitness campaign and has recorded a video for us detailing his diagnosis and how he lives with the challenges of IBD - Russell has Ulcerative Colitis like fellow Scottish International and Manchester United footballer Darren Fletcher.



Read the full story here on the main Crohn's and Colitis UK website. 

You can find out more about Russell's biography and story at the IBD: Sport and Fitness website. Plus really interesting statistics about sport and fitness with Inflammatory Bowel Disease.




Monday, 19 August 2013

Fancy Being A Fundraiser for Crohn's and Colitis UK?

Every penny donated or raised helps to make a real difference to people’s lives. Whether you give £1 or £1,000,000 we welcome your support.
Fundraising comes in all shapes and sizes to suit all shapes and sizes of people – young, old or somewhere in the middle. From simple donations through runs, challenges to wacky events  there’s something for everyone.
We’re here to help with ideas, fundraising packs, t-shirts, running vests, collecting tins, cheerleader packs and a whole lot more. 
We have ideas for ways you can raise money at your school/college/university - just click here to go through to our main Fundraising Pages where you'll find tonnes of useful information and tips.
Every little helps, as you can see from what each amount can do:
£5 - Help us to reach out to the family of a newly-diagnosed child through our Family Information Pack.
£10 - 10 patients could benefit and feel more informed about their condition through our booklet, Understanding Crohn’s and Colitis.
£20 - A person in distress could receive support from our helplines.
£50 - Craft material for a Family Fun Day to help children feel normal again.
£100 - Help pay for equipment for a research project.
£300 - A Personal Grant for someone in need.
£1,000 or more - Contribution towards a research project.
Gift AidIncrease the value of your donation by 25p for every pound donated at no extra cost to you.Find out more about Gift Aid.
For more information, call 01727 734485 or email fundraising@crohnsandcolitis.org.uk.



Friday, 16 August 2013

Guest Writer Harvey - Conclusions

Me, Myself and My Immune System: A brief timeline of my love affair with Crohn’s Disease.

Harvey Hancock
Part Four


Fast forward 2 years. My trip to university has been delayed, for reasons obvious to you. I now have to stay behind in 6th form and do an extra year while all my friends leave to go on their own university adventures. I’ll still get there, eventually. But right now I am being bullied by kids two years younger than me because I just won’t leave school. School is the last place I want to be, and my attendance drops to 50%. I’m not ill, I just refuse to go in. The work is too easy and there is nobody waiting there for me – at least nobody who wants to put a smile on my face. I so want to escape the grapples of school so it’s time to don my armour and pick up my shield. I’ll shut myself off. I’ll deflect their words and jibes. I’ll do what must be done to get on with my life. I’m going to make a success of myself and nothing will stop me. Crohn’s can do one. And those snot-nosed wotsits, surrounded by jeering friends, they’re not worthy of my time or emotion. I’ll write this year off. That’s what I’ll do. I’ll just do my work and keep my head down. And look forward. The promise of university is all I have to keep me going.

Fast forward three years. I’m in the second year of university and I have an exam in an hour. I’m not going to pass it. I go to see my tutor before it and she says “you look like crap, man.” I agree, but say that, while I’m on campus, I may as well give it a go. In the exam room my friend says that perhaps I should just go to the hospital instead. I soldier on. I finish with over an hour to spare, having written under two pages of words for two whole essays. I go home, cry, and sleep. What a waste of time.

Fast forward three weeks. By all rights, I should have failed this exam. But somehow I managed to pass. Many people will be celebrating their good grades but my 49% ranks as one of the best marks I’ve ever received. Screw you, Crohn’s disease. I. Will. Not. Fail.

Fast forward a year. University is over. My friends have left, and I’m on my own. To pass
my time I write a story about what it is like to have Crohn’s disease, and it is nearing its end. Though this piece is a timeline of my illnesses I actually conclude it by realising that this section of my life, though defining, does not define me. I have been called “tubey”, “sick boy”, “skiver” and all manner of names and missed a fair chunk of my education. I struggle with energy levels on a day-to-day basis and I can’t play sport as much as I’d like. But I am funny. I am kind. I am intelligent. I’m a good singer. I’m generous. I’m loved. I’m not too hard on the eyes (at least that’s what people say). I am not dramatic. I don’t get scared easily. I am honest and thoughtful. All of these things, self-aggrandized or not, define me far more than a scarred liver or a malfunctioning bowel ever will.


I live with this every day. And it really isn’t a big deal. It’s just Crohn’s disease, you know? And that makes me fantastically lucky - to only have Crohn’s Disease is a blessing,
all things considered. By recounting some of the negative aspects of my illness all I have done is emphasised the fact that my life has been full of laughter, friendship and success. Take a look at all those gaps I fast-forwarded through: my first kiss, my first girlfriend, passing my driving test, getting into university, late-night adventures and long summer holidays. Memories of all kinds were put to one side to give an honest account of what it’s like to be “ill”. But that never was and never will be all I am. I am greater than the sum of my parts, even if some of those parts sometimes go on strike. So don’t feel sorry for me, and don’t you dare feel sorry for yourself. There’s still plenty to look forward to: a career, love, a family and many unexpected adventures, so let’s all have a bloody good laugh. It’s only IBD, after all.

For information for Students at Uni with IBD click here.
For information for Universities click here.



Thursday, 15 August 2013

Want to Have Your Say in Important Matters? Become a Campaigner!

Crohn’s and Colitis UK campaigns actively at both national and local level and in every country of the UK to raise awareness of Inflammatory Bowel Disease (IBD) among decision makers and improve services for everyone affected by the condition.
Our campaigning work has delivered real success, including the development of clinical standards for the treatment of IBD, a debate on the disease in the Houses of Parliament and the leadership of the Prescription Charges Campaign.
Members of the Prescription Charges Coalition

However, our work will be at its most effective with your support, whether that’s by signing a petition, registering to receive our campaign e-mails, or getting in touch to see how you can best support our campaigns.

Standards and services for the treatment of IBD have come a long way thanks to our hard work, but there is still much more to do. From protecting vital health services, to campaigning to save local public toilets from closure and making the benefits system fairer, we are pushing for the changes that people with IBD need.

"If you think you're too small to have an impact, try going to bed with a mosquito in the room" - Anita Roddick

  • To find out more about what campaigning for Crohn's and Colitis UK involves, click here.
  • To see what specific campaigns Crohn's and Colitis UK are working on now, click here.



Tuesday, 13 August 2013

Guest Writer Harvey - The Difficult Kids

Me, Myself and My Immune System: A brief timeline of my love affair with Crohn’s Disease.
Harvey Hancock
Part THREE


I have come home from school crying again. Gary H keeps puffing his cheeks out to imitate my swollen face and he is doing it every time he sees me. Today he put me in a headlock in the playground and wouldn’t let me out of it until a dinner lady dragged him off me. He says, “I know you want me to apologise but I’m not going to.” to the dinner lady. “Why is that?” she responds. “Because I hate him,” Gary replies.

Fast forward a few months. It is leaving day at my primary school and the year has been very tough. My attendance has been low and I haven’t had any friends. My dreams of sailing through Yr.6 were short-lived and I can’t wait to get away from Gary H. He is stood behind me right now, because we are next to each other in the register. Our procession to get our leaving certificates is minutes away but I’m crying again. Since we were lined up Gary has been kicking me after every step we take, and kicks me repeatedly whilst we are standing still. I ask him to stop. He says “No”. The girl in front of me, Laura G, tells Gary to stop kicking me. He tells her not to tell him what to do, so she tells on him. I am dragged out of the line and into the girls’ toilets and cry my eyes out – I don’t understand why he is trying to make me feel so bad and this is supposed to be my special day. The procession goes on without my name being called, and I am reminded afterwards that people missed me. But it doesn’t really do much to make me feel better.

Fast forward a few months. It is my first day of secondary school. I am excited because nobody will know who I am and how I sometimes have “interesting bowel movements”, and that’s good. I meet my new peers and teachers without having to mention my assorted maladies and for the first time since diagnosis I feel normal. Things are looking up.

Fast forward to next year. I am walking around school and everybody knows who I am. I am the boy with a “pipe in his face” – a nasogastric tube that is used to feed me a liquid diet. I’ve been off of school for 12 weeks now, and I wish I wasn’t back here, where stares come from every angle, but even this is preferable to spending another day in bed watching Scooby Doo. As I get pushed into a locker I reconsider.

Fast forward to 6th form. GCSEs and AS levels have come and gone, and some of the guys still call me “tubey”. I look forward to leaving this place, to university. I am excited because nobody will know who I am and how I sometimes have “interesting bowel movements”, and nobody knows that I had a pipe in my face. Nobody will know that I was bullied by my friends, even by boys significantly younger than me. I’m nervous, but it’s that excited nervousness. I’ll be an equal.

Coming up in Part 4 - Uni and Conclusion...

Monday, 12 August 2013

Looking for Media Volunteers

Hi All!


We have a very specific request for media volunteers. An American journalist has asked us if we can find an IBD patient who has taken part in an IBD-related clinical trial or was part of the IBD Registry set up (this is a very new project, so there's only a very few of you out there!). This is for a very well respected American journal and they are keen to speak to someone British.

Please share this if you have any friends you think this might be relevant for.

More details can be found on our main website: www.meandibd.org

Thanks from the Me and IBD Team