Showing posts with label Becoming an IBD volunteer. Show all posts
Showing posts with label Becoming an IBD volunteer. Show all posts

Monday, 23 June 2014

Fatigue in IBD

People with Crohn’s and Colitis can now measure the severity and impact of their fatigue using a newly researched and validated IBD Fatigue Scale.

sam faiers fatigueThe IBD Fatigue Scale can be found on our new Fatigue in IBD microsite, along with our research findings from the 4-year project:
The scale is the product of our charity’s successful scientific partnership with researchers at King’s College London, University College London and the Addenbrookes’ NHS Trust.
For the 10,000 newly diagnosed young people with Crohn’s and Colitis every year, fatigue is a deeply debilitating symptom and Crohn’s and Colitis UK is delighted to welcome the support of Sam Faiers. Sam is helping the charity to fight IBD fatigue by improving awareness of this ‘hidden symptom’.
“The exhaustion I experienced was horrible, life limiting and a typically untreated symptom for people with Crohn’s or Colitis. This new Fatigue Scale is a breakthrough and will make talking to my doctors much, much easier. This really is great news for everyone with IBD.”
We are still looking for media volunteers to speak to the press in the upcoming weeks about their experiences with IBD Fatigue. If that sounds like something you'd like to get involved in, please email media@crohnsandcolitisuk.org.uk. So follow in Sam's footsteps and speak out about this often invisible and little understood symptom of Inflammatory Bowel Disease.



Monday, 12 August 2013

Have You Ever Thought About Volunteering?

If you have some spare time and are willing to develop existing and new skills you can volunteer with Crohn’s and Colitis UK.

Anyone aged 18 years or over can volunteer.
Don’t worry if you think you might not have the skills to carry out roles that you are interested in because we sometimes provide role-specific and more general training for volunteers.
Volunteering isn’t just about sharing your skills and experience. Crohn’s and Colitis UK volunteers tell us that through volunteering they make new friends and develop confidence and self-esteem.

To find out how to get involved with Crohn's and Colitis UK click here.

To find out what particular roles are being recruited for now click here.